Transforming MND Care Audit Tool

2 March 2017

 MND Association


The Motor Neurone Disease Association (MNDA) is delighted to announce the launch of the Transforming MND Care audit tool. The tool has been designed for health and care professionals to support implementation of the NICE MND guideline (NG42) which was published in 2016. We worked with health and social care professionals to produce a fit for purpose instrument. The objective of developing the tool was to help teams to measure their level of compliance with the standards outlined in the guideline.


Interested teams can carry out the clinical audit by inputting relevant information into the Excel-based spreadsheet provided. There is also an accompanying patient experience survey for use, the results of which also inform the final audit conclusions. The data input will populate graphs that display feedback results in a visual way. All outcomes will feed into an improvement plan ready for discussion and to agree action by the team.


The Association has a developing partnership with the ARTP and we hope you are able to support this initiative. The NICE guideline is clear about the importance of high quality respiratory function and sleep tests which should be available to people living with MND and which are central to effective care


Teams completing the audit are able to:

  • benchmark current performance
  • focus efforts to improve outcomes for people living with MND
  • plan cost-effective improvements
  • enhance professional practice
  • better understand the experiences of people with MND using the service
  • improve multidisciplinary working and communication with partner organisations.


To receive a copy of the tool please email or telephone 01604 611770


Martyn Bucknall, ARTP President said.

‘This audit tool is much needed as it clearly positions the important and essential roles of respiratory/sleep physiologists and scientists in the high quality care of people and their families living with MND. Lung function testing, sleep investigations and non-invasive ventilation offered in a timely manner to the very highest standards contribute to the accurate diagnosis, management and treatment of patients with MND. ARTP fully support this audit tool ’


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